Library Guides: CLINICAL RESEARCH: Research Guide: Find Data

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Jeanie Winkelmann

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In This Section

In this section, you'll find:

Publicly available datasets for use in secondary research

Find a dataset that's not listed here?

Let us know and we can add it for future use! This list is meant to be a living document as what's freely available will change over time.

Publicly-Available Datasets

Publicly Available Datasets for Secondary Analysis

Many datasets are available for public use at low cost—to generate a study using retrospective data, consider these sources either in the US or from other countries.

Data Sharing Resources - National Library of Medicine

NIH-Supported Data Sharing Resources
A list of data-sharing repositories, to help researchers locate repositories for sharing or accessing data.

By Category:

Agricultural Datasets

Agricultural Research Service Datasets (USDA)
USDA datasets, organized by national program. See also the Ag Data Commons.

Ancient DNA and Disease

David Reich Lab Datasets - Ancient Individuals, Biology, and Disease (Harvard)
See also the Allen Ancient DNA Resource (AADR) page.

Biomechanics Datasets

Biomechanical Data Resources - International Society of Biomechanics
Datasets and data resources from ISB members.

Data Innovations

Data Innovations - AHRQ
An initiative of the Agency for Healthcare Research and Quality. See also the main AHRQ Data Analytics page.

Framingham Heart Study

Available Data - FHS
See also the Information for Researchers page.

Genomics and Biotechnology

National Center for Biotechnology Information Datasets
Genomic Databases - List from Johns Hopkins
A research guide from Johns Hopkins - explore other sections of this guide for tips on finding datasets, and other links to publicly available data.
Harvard Personal Genome Project
GenBank
Genetic sequence database from the NIH National Center for Biotechnology Information

Health Economics

Medical Expenditure Panel Survey - AHRQ
See also the main AHRQ Data Analytics page.
Browse Data Sets - Health Economics Research Centre (Oxford)
The Interactive Compendium of Health Datasets for Economists

Health and Wellness

National Health and Nutrition Examination Survey Questionnaires, Datasets, and Related Documentation (CDC)
From the National Center for Health Statistics at the CDC
Healthcare Cost and Utilization Project - AHRQ
See also the main AHRQ Data Analytics page.

Indigenous Health Datasets

Indigenous Health Researchers Database
Researchers studying indigenous health, compiled by the National Collaborating Centre for Indigenous Health.

Cancer

SEER
SEER collects data on cancer cases from various locations and sources throughout the United States, beginning in 1973.

General Guides

U.S. Health Statistics and Data - Library Guide
List compiled by the University of Toronto.
Datasets - Library Guide
List of data resources from the University of South Florida.

CLINICAL RESEARCH: Research Guide | Find Data